Een paar jaar geleden hebben we, samen met de BESPEED (Belgian Society for Pediatric Endocrinology and Diabetology) artsen, noodpasjes ontwikkeld op bankkaartformaat.
Deze pasjes kunnen van pas komen vb. bij opname op spoed waar niemand anders bij is die het syndroom kent.
Hierop staat een korte uitleg over het syndroom en medische aandachtspunten die een verzorger kan helpen om gepast te reageren. Je kan zo’n pasje opvragen via: info@praderwillivlaanderen.be
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